Nathan made it home yesterday from the hospital as you can see his fan club was very excited to see him. This week we are hoping to see some sign that the treatment had an effect as of now Nathan is transfusion dependant for platelets and red cells, the treatment of course added some hardship to his counts but there were no other options but to try. Nathan will be enjoying his good days to the max as much as he can please keep in prayers for control of diseas and a treatment that will offer a better opportunity for a cure. Nathan is very rare and unique on how he responds to medications and different situations so we are praying he continues to stay rare and unique and beats this t-MDS/leukemia, he jas a tremendous fight on his hands and hes ready to stand up to ot and kick its ass he just needs the right treatment to come along.
We thank you all for keeping our family toght in prayers.
After a very long month of not feeling well and many concerns with very low blood counts, we sadly share that Nathan has a type of leukemia… MDS is a type of leukemia that is considered immature cells, Nathan’s treatment will basically consist of the same treatment though and he has a much better chance of kicking it’s butt; the treatment plan will consist of very intense chemo administered over days and then into the transplant process. Time is VERY CRUCIAL for Nathan with this, if things take too long, Nathan’s MDS cells can and will turn into full blown AML and that will make a difference in treatment and hardship through the fight. This diagnosis has come from his treatments needed for his osteosarcoma, his chemo’s; that is a risk taken to fight cancer and many other things that involve breaking down the bodies defenses.
We’ve talked to Nathan’s Dr’s and are confident the plan is a good one and gives Nathan a great chance of kicking cancers ass again. The team is close to Nathan already knows a lot about him and that will help him along the way.
Nathan is aware and as of now is handling it pretty well, he is scared, concerned, and very nervous, BUT there is a light at the end of his tunnel still and that hope alone will give him strength. Nathan has been included in all of this and kinda had a feeling it was going in this direction so he sorta expected it when we talked. Nathan has just entered into a new school this year and has truly enjoyed the experience and had made some great friends, he naturally won’t be back the rest of the year but the connection continues and is fantastic for him, as the last 2 battles he’s been through he really has not had “friend” support, so that alone will be a great benefit to him as well.
Nathan has been fighting for just over 6 yrs now between his original diagnosis of osteosarcoma; fighting it twice – to all the surgeries and complications. He’s had tons of chemo, many surgeries, side effects and this just tops it all; his treatment has made him sick: AGAIN. What do you do when your faced with a decision at the time look at the risks in the future or treat and deal with the here and the now…you treat and deal with the here and the now or you have no future to worry about. We and Nathan have no regrets of his treatment options, we are hurt, frustrated, scared and any and all you can imagine and more BUT he’s here, he may be going back into the fight but he’s here to fight and determined to kick butt; AGAIN!!
So many ask what can we do/how can we help…you can help by keeping Nathan and my family in prayers please and you can make a great difference by registering to be a match for marrow donors at: