Taking “AIM” on Childhood Cancer 4th Annual 3D Archery Tournament

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Thank you to all who made this possible with phenomenal sponsors and with a record turnout, it was most definitely a bittersweet day for many. The weather although a tad chilly was great, everyone had a good time, shot good … Continue reading

Happy Birthday Nathan: Forever 16

It’s not fair to you or any other child and family having to go through this, childhood cancer is a relentless disease and what it steals form the child is something that can never be regained back, and what childhood cancer stole from your friends and us, your family; your parents and your older brother is absolutely devastating and cruel. You left us for a better place, to gain a new body and become whole again. I do not con20170227_141421sider this loosing to cancer I consider this as you winning eternal freedom and glory; although we suffer and hurt deeply from your loss, I find a piece of comfort knowing that your not suffering and that you didn’t. What you didn’t have a chance to learn as didn’t many others either is, Thursday night Jan. 4th I spoke with your Dr. and learned from your BMB that you had been diagnosed with full t-AML, a third cancer that again had no treatment for you but plan C and that was to only calm it from exploding throughout your body to help ease things, but t-AML after going through osteosarcoma 2x and t-MDS 2x with a BMT would have been unforgiving, and for that I am grateful God spared you from all that but non the less I, WE ALL miss you horribly, every second, minute, and hour of every day.

Today February 27, 2018 I will celebrate your birthday as I know you would want, this is  the day God gave you to me, although for a short time, it was a time of much joy and beautiful memories; a time I’ll/we’ll never forget, a time yet again God answered my prayers, a prayer for another child. I couldn’t have done all this without God by my side and many will wonder how I can feel that way with all you went through and then loosing you, but if many knew the truth that I was to have no more children when I did have you they may understand a bit better what a true miracle you were from the very beginning. I will/am shed many tears and many will flow like the many falls we hiked to, but I know in my heart you are free and in the land of the unimaginable, whole, not sick and complete again; you are alive in my heart and mind and with me in everything I do. I can feel the peace you have at last and all your dreams and desires to make a difference and be there for other children and families, it will all continue to get carried on, you created a legacy Nathan and I promise you, everything you went through and endured will not be in vein; there are many things to be learned from whether it be medically, personally, humanity, and/or just life; many will learn and grow from you as a person, there will forever be “Nathans Story”.

Forever 16, I love you my son… We WILL be together again <3

I will Never Give UP !    #13  #RIPmyultimatewarrior

HAPPY BIRTHDAY

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Nathan update…

Well it’s been almost a month now since Nathan has come home and it’s long and grueling…Nathan is on full isolation even at home with regular visits to the transplant clinic; meaning still no living and enjoying life like a normal teen should be BUT he’s home and that alone is a relief and we are extremely grateful for. The isolation process remains in effect for 100 days post transplant and Nathan is nearing his 60 day mark next week, we have a ways to go yet.

Nathan is doing well with recovery from his transplant, the transplant was deemed a success as far as the transfer of the donor(his Dad) to recipient, how it has effected the actual cancer we still do not know, there is a BMB scheduled to check in on that. Labs have  maintained well until just recently when he needed a good pump up of Red cells, so that alone is great news; his ANC is fantastic but unlike our situation when Nathan was being treated for osteosarcoma(bone cancer), his ANC (Absolute neutrophil count) numbers after the BMT can be deceiving; in the transplant world it tells us the cells are growing and doing well but as far as his immunity, not the case; he has none due to being on immune compressing medications to help avoid rejection and GvHD (Graft vs. Host disease), something very high risk with a Haplo Transplant; which is what Nathan had due to not being able to find a matched donor.

Nathan is working hard on getting his remainder of school work pumped out so he can continue onto the 11th grade as he should, while anxiously awaiting for some of the restrictions to lift so he can enjoy some fun activities, as he should be.

Thank you everyone for so many wonderful words of encouragement and thoughtful prayers for Nathan and the rest of my family. God Bless!!!!

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A Piece of Home 2016 “Sponsor a Tree”

It is nearing that time of year again, the time where everyone starts preparing for the holidays, whether you celebrate Christmas, Kwanzaa, and Hanukkah(these are just a few of the celebrations that take place). Although in some aspects different they have one thing in common and that’s to be together as a family and usually in the home enjoying the celebration. In the world of childhood cancer or any serious medical world that’s not always the option for those going through the treatments or the hardships, many spend their time of celebration in the hospital’s where they need to be at that time for whatever the reason it may be. Our mission at Nathan’s Story with “A Piece of Home” is to help ease that by bringing some of that home comfort to those in patient.
As many of you can only imagine being in the hospital over the holidays is no fun…now imagine yourself as a child fighting cancer, a new way of life for you and your family that you have just embarked on in the last month. Nathan started his chemo treatments on Thanksgiving day of 2010, what better day we thought to be thankful for a “beginning to and end”. The chemo treatments were three weeks out of four in the hospital as inpatient, he was pulled out of school and taught by the teacher in the hospital and a home teacher the schools sent to our home, when he was there. Nathan and our family spent every holiday in the hospital as in patient either for chemo treatments or fevers/isolation with the exception of Halloween. The staff did everything they could to help make this as joyful and painless as they could but when it all came down to it we were still in the hospital for the holiday’s; childhood cancer seemed determined to take from us those special moments that we as a family cherish.
We at Nathan’s Story C.C.O. wanted to help make it even more special, beings we could look at it from a different perspective then most since we actually were in the situation. We personally came up with the idea of bringing in “A Piece of Home” for the holidays. Our first year and within months of becoming an official 501(c)(3) we raised funds to get the children that would be in the hospital for the holidays their own holiday tree. The trees we chose were specifically chosen with the children in mind and with the help of Nathan himself. The trees are no more then 32-36″ with fiber optic lights, lights that change colors automatically and cascade through the room with soft soothing colors to be able to relax and and enjoy. The children as well as the family truly enjoy the soft glow of the tree and the changing of the lights, it offers a relaxed and peaceful moment.
We reached out to everyone with our “sponsorship program” last year for the first time to help us grow in our mission and make it even more special and there was a response that was truly amazing and helped not only provide the trees but we where able to provide a holiday dinner and gifts for ALL the children including the siblings, we had crafts and just all around a great coming together of everyone around enjoying each others company and conversation; all this on the unit of a hospital.
Won’t you please help us again by “Sponsoring a Tree”…

Sponsorship is $20.00 per tree; you can donate by secure check out below or with check,  Mail to: Nathan’s Story PO Box 213 Galena MD 21635

Thank You…

Nathan’s Story




https://p9.secure.hostingprod.com/@www.nathansstory.com/ssl/index.htm

 

**All donations are tax deductible as we are a Federally approved 501c3 non-profit and will provide receipt of donation upon request.

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A Piece of Home 2015

As many of you can only imagine being in the hospital over the holidays is no fun…now imagine yourself as a child fighting cancer, a new way of life for you and your family that you have just embarked on in the last month. Nathan started his chemo treatments on Thanksgiving day of 2010, what better day we thought to be thankful for a “beginning to and end”. The chemo treatments were three weeks out of four in the hospital as inpatient, he was pulled out of school and taught by the teacher in the hospital and a home teacher the schools sent to our home, when he was there. Nathan and our family spent every holiday in the hospital as in patient either for chemo treatments or fevers/isolation with the exception of Halloween. The staff did everything they could to help make this as joyful and painless as they could but when it all came down to it we were still in the hospital for the holiday’s, childhood cancer seemed determined to take from us those special moments that we as a family cherish.

We at Nathan’s Story C.C.O. wanted to help make it even more special, beings we could look at it from a different perspective then most since we actually were in the situation. We personally came up with the idea of bringing in “A Piece of Home” for the holidays. Our first year and within months of becoming an official 501(c)(3) we raised funds to get the children that would be in the hospital for the holidays their own holiday tree. The trees we chose were specifically chosen with the children in mind and with the help of Nathan himself. The trees are no more then 32-36″ with fiber optic lights, lights that change colors automatically and cascade through the room with soft soothing colors to be able to relax and and enjoy. This year would be our second year, and we hoped to make it even more magical then the last…We wanted to provide the children and families not only the trees but a holiday evening, that would include dinner, trees, gifts, crafts, and maybe a few games…an evening that will let them forget where they are and let them feel like they have “A Piece of Home” with them.

We are started a fundraiser to help us do just that, and it soared with the help of our volunteers and friends it was a GREAT success, there was plentiful for everyone. We had so many friends and others whom we did not know jump right in and sponsor a Tree for the children and the volunteers to help us that evening was amazing. A special group called the Island Creek Garden Tractor Pullers got involved with the help of the donation of the toys for the children and their siblings, they took up donations and we met one evening and went shopping, we had children from ages 2wks to 18yrs of age.

We’d like to thank everyone who became part of such a wonderful moment for the children and families over the holiday season, you all truly are a blessing.

Thank you!!!

Nathan’s Story Childhood Cancer Organization

 

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** ALL PHOTOS, VIDEOS, AND ETC. ARE PROPERTY OF NATHAN’S STORY INC. MAY NOT BE DUPLICATED OR USED WITHOUT PERMISSION OF NATHAN’S STORY INC. PERMISSION WITH THE EXCEPTION OF SHARING THE STORY AS WHOLE  AS SHARED ABOVE …IN DOING SO CAN BRING LEGAL ACTION

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