Thank you everyone for all your kind words, words of encouragement to Nathan and your prayers…
It has been a very busy week; Nathan was admitted into the hospital late Saturday evening for a fever and bad chills, the concerns with the fever for Nathan where because he very low blood counts, the fever represented a possible infection, this kinda of stay we are very familiar with from the last 2 cancer battles.
Thankfully the blood cultures showed no growth for infection, but the thought is the cancer is the cause of the fevers, as Nathan runs a low grade fever, chills, and gets winded every evening, we need to watch how high the fever gets as with not having an immune system there is always a chance for an infection to find its way.
Through the course of our stay more results came back for Nathan and there are even more concerns: Nathan has a rare diagnosis and on top of that it’s been determined to be aggressive. Nathan’s Dr’s have been in communication with Dr’s across the country consulting, there are many voices going into his treatment to give him the best care they can and chance to kick it’s butt, his specific diagnosis is just not common in children and with it showing it’s aggressive that adds to the complexity as well. The Dr’s have repeated the bone marrow biopsies and also did an LP, along with that LP he received an infusion of chemo through the access, they need to make sure the cancer cells have not matured and entered the spinal fluid. This brought us into the chemo world much sooner then we had anticipated, so of course preparation instead of having time was done quickly. Since the new information has come to light, the Dr’s have had to come up with a new plan to get Nathan to transplant as long as these last marrow biopsies show the t-MDS has not matured.
Nathan is doing the best he can; naturally he has his times of fear, sadness, and concern and others he’s plotting and planning just how to prank his nurses when he is inpatient again and for the transplant stay; that’s our Nathan!
We are home again for now and waiting for news of his test results so we can get this path paved and on the way. Please keep Nathan and my family in your prayers, this is gonna be a very different battle for him and our family to go through but we will do this…
NATHAN IS A FIGHTER; AN ULTIMATE WARRIOR!!!!!
Thank you all and God bless!
