Turn of Event’s – Lap 3

Thank you everyone for all your kind words, words of encouragement to Nathan and your prayers…
It has been a very busy week; Nathan was admitted into the hospital late Saturday evening for a fever and bad chills, the concerns with the fever for Nathan where because he very low blood counts, the fever represented a possible infection, this kinda of stay we are very familiar with from the last 2 cancer battles.

Thankfully the blood cultures showed no growth for infection, but the thought is the cancer is the cause of the fevers, as Nathan runs a low grade fever, chills, and gets winded every evening, we need to watch how high the fever gets as with not having an immune system there is always a chance for an infection to find its way.

Through the course of our stay more results came back for Nathan and there are even more concerns: Nathan has a rare diagnosis and on top of that it’s been determined to be aggressive. Nathan’s Dr’s have been in communication with Dr’s across the country consulting, there are many voices going into his treatment to give him the best care they can and chance to kick it’s butt, his specific diagnosis is just not common in children and with it showing it’s aggressive that adds to the complexity as well. The Dr’s have repeated the bone marrow biopsies and also did an LP, along with that LP he received an infusion of chemo through the access, they need to make sure the cancer cells have not matured and entered the spinal fluid. This brought us into the chemo world much sooner then we had anticipated, so of course preparation instead of having time was done quickly. Since the new information has come to light, the Dr’s have had to come up with a new plan to get Nathan to transplant as long as these last marrow biopsies show the t-MDS has not matured.

Nathan is doing the best he can; naturally he has his times of fear, sadness, and concern and others he’s plotting and planning just how to prank his nurses when he is inpatient again and for the transplant stay; that’s our Nathan!

We are home again for now and waiting for news of his test results so we can get this path paved and on the way. Please keep Nathan and my family in your prayers, this is gonna be a very different battle for him and our family to go through but we will do this…

NATHAN IS A FIGHTER; AN ULTIMATE WARRIOR!!!!!
Thank you all and God bless!

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A Piece of Home 2016 “Sponsor a Tree”

It is nearing that time of year again, the time where everyone starts preparing for the holidays, whether you celebrate Christmas, Kwanzaa, and Hanukkah(these are just a few of the celebrations that take place). Although in some aspects different they have one thing in common and that’s to be together as a family and usually in the home enjoying the celebration. In the world of childhood cancer or any serious medical world that’s not always the option for those going through the treatments or the hardships, many spend their time of celebration in the hospital’s where they need to be at that time for whatever the reason it may be. Our mission at Nathan’s Story with “A Piece of Home” is to help ease that by bringing some of that home comfort to those in patient.
As many of you can only imagine being in the hospital over the holidays is no fun…now imagine yourself as a child fighting cancer, a new way of life for you and your family that you have just embarked on in the last month. Nathan started his chemo treatments on Thanksgiving day of 2010, what better day we thought to be thankful for a “beginning to and end”. The chemo treatments were three weeks out of four in the hospital as inpatient, he was pulled out of school and taught by the teacher in the hospital and a home teacher the schools sent to our home, when he was there. Nathan and our family spent every holiday in the hospital as in patient either for chemo treatments or fevers/isolation with the exception of Halloween. The staff did everything they could to help make this as joyful and painless as they could but when it all came down to it we were still in the hospital for the holiday’s; childhood cancer seemed determined to take from us those special moments that we as a family cherish.
We at Nathan’s Story C.C.O. wanted to help make it even more special, beings we could look at it from a different perspective then most since we actually were in the situation. We personally came up with the idea of bringing in “A Piece of Home” for the holidays. Our first year and within months of becoming an official 501(c)(3) we raised funds to get the children that would be in the hospital for the holidays their own holiday tree. The trees we chose were specifically chosen with the children in mind and with the help of Nathan himself. The trees are no more then 32-36″ with fiber optic lights, lights that change colors automatically and cascade through the room with soft soothing colors to be able to relax and and enjoy. The children as well as the family truly enjoy the soft glow of the tree and the changing of the lights, it offers a relaxed and peaceful moment.
We reached out to everyone with our “sponsorship program” last year for the first time to help us grow in our mission and make it even more special and there was a response that was truly amazing and helped not only provide the trees but we where able to provide a holiday dinner and gifts for ALL the children including the siblings, we had crafts and just all around a great coming together of everyone around enjoying each others company and conversation; all this on the unit of a hospital.
Won’t you please help us again by “Sponsoring a Tree”…

Sponsorship is $20.00 per tree; you can donate by secure check out below or with check,  Mail to: Nathan’s Story PO Box 213 Galena MD 21635

Thank You…

Nathan’s Story




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**All donations are tax deductible as we are a Federally approved 501c3 non-profit and will provide receipt of donation upon request.

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