FAMILY FUN DAY #forthewarriors

Come on out and have some fun with us at the Main Event near Christiana Mall in Newark, DE. You’ll enjoy some “FAMILY FUN” bowling, billiards, laser tag and gravity ropes and much more…

The evening offers many different opportunities to enjoy a few hours with your kids and/or your family all while making a difference for children fighting cancer. Each ticket costs $30 (plus processing fee) and can be purchased right here on the Eventbrite site. Tickets will be available at the door for $40.

Each ticket purchase will include unlimited bowling & shoe rental, billiards, shuffleboard, laser tag, and gravity ropes; 2 hours of unlimited arcade play and 2 slices of pizza with fountain drink.

Since the following day is President’s Day and a holiday for some kids and parents, why not come out and play hard and sleep in on Monday !

If you’re interested in coming out to support a worthy cause but don’t want to join the activities, a simple purchase of food and/or soft drinks will still ‘make a difference’. Nathan’s Story will get 20% of all proceeds from these purchases….just be sure to give us your receipt at the door and they’ll transfer into funds for the children.

If you feel lucky, you might just want to purchase some 50/50’s at a chance for some really great prizes…..

Thank you in advance for everyone who participates in this family event to raise awareness and funding for those children who need it most and we look forwarding to see you there 😊

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Taking “AIM” on Childhood Cancer 4th Annual 3D Archery Tournament

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Thank you to all who made this possible with phenomenal sponsors and with a record turnout, it was most definitely a bittersweet day for many. The weather although a tad chilly was great, everyone had a good time, shot good … Continue reading

Mixed Day of Emotions; Thanksgiving…

As we enter in the Thanksgiving day, please remember childhood cancer knows no boundaries; it does not focus on any one particular types of person, no matter who or where you come from it exists and as families are hearing those word that no one wants to hear, life keeps on going; it does not stop whether it be for the holiday seasons or summer time, birthdays, and/or any celebration…Tomorrow on Thanksgiving day we will awake to a day that 6yrs ago we thought would be the beginning to an end; little did we know at that time what we where really in for, always looking for the silver lining this was not it. Thanksgiving day in 2010 was not only a very scary day for my family but the beginning of everlasting it seems. Nathan was admitted in the hospital on Nov. 18, 2010 with a diagnosis of osteosarcoma, within a 24hr period he’d withstand every test known to see how badly the cancer had spread throughout his little body; we stayed in patient through this whole process(2 weeks) including waiting for the results from his biopsy to confirm the already known fear, but we could not proceed without the exclamation point on it from pathology, all the while learning what was going to happen and teaching him how NOT to walk on his leg to protect it from any risk of fracture or breaking. News came in and chemo was due to start on Thanksgiving day…we felt this is the perfect time to start; WHAT BETTER DAY TO THANKFUL FOR; “A BEGINNING TO AN END”! Little did we know, it wasn’t going to end up like that, Nathan’s cancer will haunt him for the rest of his life BUT to my point…As we are all enjoying our time with family and friends and being grateful and thankful there are many who are facing some of the most difficult days of their lives, no matter what it may be specifically…those people, children, and families could surely use your great thoughts, an add in to your prayer around your dinner table, and a simple thought of positiveness and hope…please remember as it is such a beautiful day of being together for so many it’s also a day of fear and sorrow for others as well, be truly thankful and grateful for what you have and those moments…PLEASE KEEP ALL AND EVERYONE IN THOUGHTS AND PRAYERS!!!

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A Piece of Home 2016 “Sponsor a Tree”

It is nearing that time of year again, the time where everyone starts preparing for the holidays, whether you celebrate Christmas, Kwanzaa, and Hanukkah(these are just a few of the celebrations that take place). Although in some aspects different they have one thing in common and that’s to be together as a family and usually in the home enjoying the celebration. In the world of childhood cancer or any serious medical world that’s not always the option for those going through the treatments or the hardships, many spend their time of celebration in the hospital’s where they need to be at that time for whatever the reason it may be. Our mission at Nathan’s Story with “A Piece of Home” is to help ease that by bringing some of that home comfort to those in patient.
As many of you can only imagine being in the hospital over the holidays is no fun…now imagine yourself as a child fighting cancer, a new way of life for you and your family that you have just embarked on in the last month. Nathan started his chemo treatments on Thanksgiving day of 2010, what better day we thought to be thankful for a “beginning to and end”. The chemo treatments were three weeks out of four in the hospital as inpatient, he was pulled out of school and taught by the teacher in the hospital and a home teacher the schools sent to our home, when he was there. Nathan and our family spent every holiday in the hospital as in patient either for chemo treatments or fevers/isolation with the exception of Halloween. The staff did everything they could to help make this as joyful and painless as they could but when it all came down to it we were still in the hospital for the holiday’s; childhood cancer seemed determined to take from us those special moments that we as a family cherish.
We at Nathan’s Story C.C.O. wanted to help make it even more special, beings we could look at it from a different perspective then most since we actually were in the situation. We personally came up with the idea of bringing in “A Piece of Home” for the holidays. Our first year and within months of becoming an official 501(c)(3) we raised funds to get the children that would be in the hospital for the holidays their own holiday tree. The trees we chose were specifically chosen with the children in mind and with the help of Nathan himself. The trees are no more then 32-36″ with fiber optic lights, lights that change colors automatically and cascade through the room with soft soothing colors to be able to relax and and enjoy. The children as well as the family truly enjoy the soft glow of the tree and the changing of the lights, it offers a relaxed and peaceful moment.
We reached out to everyone with our “sponsorship program” last year for the first time to help us grow in our mission and make it even more special and there was a response that was truly amazing and helped not only provide the trees but we where able to provide a holiday dinner and gifts for ALL the children including the siblings, we had crafts and just all around a great coming together of everyone around enjoying each others company and conversation; all this on the unit of a hospital.
Won’t you please help us again by “Sponsoring a Tree”…

Sponsorship is $20.00 per tree; you can donate by secure check out below or with check,  Mail to: Nathan’s Story PO Box 213 Galena MD 21635

Thank You…

Nathan’s Story




https://p9.secure.hostingprod.com/@www.nathansstory.com/ssl/index.htm

 

**All donations are tax deductible as we are a Federally approved 501c3 non-profit and will provide receipt of donation upon request.

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Broken Hearts and Tears of Children

alex While you see so many children with smiles on their faces there are many more you may not see… These are the children of the childhood cancer world, yes that’s right children get cancer too, and at to high of a rate at that.

Childhood cancer come in many different sub-types, it’s not just one disease…they get all the cancers adults get and some that adults don’t. The bodies of children inside and out are not fully developed yet, so as you can imagine chemo does unbelievable things to our children’s bodies inside and out. We see and hear all about the adult world as it’s discussed and talked about on a regular basis, but what people don’t like to talk about or discuss is children suffering, yes I said suffering, not only are the treatments they receive decades old and made specifically for adults and administered at high doses, but these tiny little humans are trying to grow both mentally and physically and these adult based chemo in high dose forms to try and take a lot of that away from our children, let alone everything else it does…BUT what many-many folks don’t realize again is that these beautiful children fighting to survive and to have somewhat of a decent life afterwards is they do a lot of growing up in the hospital(s) and cannot attend school because of their particular delicate situation(s). The friends and playmates they make are also children in delicate/difficult situations as well. The bonds between these children become very tight, they share moments, stories, dreams and encourage each other through hard times; they are some of the most bravest and strongest people I know. We/they all become one very close tight nit family/community, we share tears, shoulders, struggles, and yes at times we can find laughter.

Nathan has been in this world now for just about 6years and throught these years he has like many of the children met and grown very fond of many of the children that share his delicate life, they may not all share the same diagnosis but that don’t stop them from understanding and bonding. We have met so many families from all walks of life and Nathan being out of school for so long and away from so many has become very close to these children/families he shares so much with and they have filled voids in his life that may not have been created if he was not diagnosed with cancer, they have become his friends, close friends; along the way and in all this he has also had to say “goodnight” to many…Yes there again another world our children who are diagnosed with cancer have to endure that maybe they would not as much if there was a change and a huge difference in how they are treated with cancer… Part of getting the children through recovery is to keep their stress levels at a minimum, you they have toxic chemicals, can’t go to school, cannot be a regular actuve child, lives primarly in a hospital and the list goes on…we are to keep the stress level at a minimum..UM YEAH NOPE! This past week we, the childhood cancer community have lost yet another young life to cancer; this young man battled 3 different types of cancer, being diagnosed lastly with a terminal brain tumor; this young man has been along with us from the start for the most part, Alex was the first we met, that was diagnosed with the same type of cancer as Nathan, osteosarcoma; bone cancer. In our first meeting his words of encouragement he offered not only to Nathan but to me, an adult, were just so uplifting and encouraging that I will never forget that day, all while Nathan was dealing with his wonderful side effects of his steroids he needed to take his chemo, but as it was, Alex paid no mind to that; he said no worries that happens to us all; we all go through it, its part of the course.(unacceptable world for children) All week long I struggled to tell Nathan, as he has his own struggles going on as well and Drs cannot express enough just how imporatan it is to keep his stress at a very minimal very low level…feeling horribly, I decided not to share just yet as Nathan had an event coming up that he was invited to attend as a HERO, a hero: a child fighting, who has fought cancer, anyways he needed this desperately, I found myself extending sympathy and apologies all at once to the mother/a friend of the young man, who was laying her beautiful son to rest the same day. Our day went off beautifully for Nathan, all the while I was just agonizing if I did the right thing, with a very heavy heart and mind I participated in the day along side of my son who was just in his glory with the outcome of his experience, thinking of this young man and his family and all attending his services at the same time; I wept many times through out the day, I wept in pain and in joy, it was a emotional struggle, you see the event was for another little boy who is also fighting cancer and has quite a ways to go yet to be done with his treatments and who will as the parents just found out, spend the rest of his life fearing another diagnosis of another cancer due to a genetic disorder. Nathan understands all too well and too much for being 15, so does all the other children who are put into these situations. This morning as I knew in my heart I could not hold it any longer I explained to Nathan the loss of Alex, the whole week and why I waited…in return my son who understands beceause we’ve been here too many times before, got angry, very angry with emotion and expressed to me that this would not happen if people, those people who could truly do something listened and trey cared enough to do it, angry that there is so little done to help make this NOT happen, so very little known to the general public that CHILDREN GET CANCER TOO and to top it off he just can’t comprehend how little the children mean to the world…

THESE ARE THE TEARS, FEARS, AND THE BROKEN HEARTS OF OUR CHILDREN FIGHTING CANCER; THINGS NEED TO CHANGE!

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“Pain and Beauty of the Pediatric Oncology Nurse”…

nathanprofile croppedI came across this on a friends post as a share, I’ve seen it before and it moved me then, so this time I decided to touch on it (I’m not honestly sure who is the original author to it, to give them proper credit for it); this friend is also a Pediatric Oncology Nurse, was one of many Nathan had as a matter of fact. This is a great write, one that is so true I’m sure from a nurses angle, I can imagine how so many must say these words when they hear of the jobs these nurses have, but let me tell you what those nurses mean to US; US the families of the children fighting; THE WORLD!! We rely on them so much, they are our shoulders, confides, our support, and the list just goes on and on, they become part of our world like one could never imagine, but that is us, the parents and family; what they mean to our children far exceeds this…

Our children depend and rely on them for everything to help get them through that “in patient” stay, no matter what it may be for at the time(thre are so many) to treat their cancer with meds, to take the pain away, the nausea, itching, burning, fevers, rashes, and the list goes on and on. Nathan would thank his nurses every time they came in no matter what it was he said thank you, he may not have liked what was happening at that time but he knew it was going to help him in his time of need.

Nurses are an amazing special breed of people, we are grateful for our nurses and everything they have done and continue to do…lastchemo

~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~

The automatic response when I tell someone that I work in pediatric oncology is inherently the same;

“Wow. that must be really sad.”

And every time a person says this, a million thoughts and feelings run through my head of things I could tell them… things I could tell you.

I could tell you about the anti-nausea medications, the strict chemotherapy orders, the weekly radiation schedule, the study drug protocols… the blood product transfusions our patients need daily to survive. The bio-therapy, the lab draws, the IV medications, the pain that never seems controlled. The hazardous body waste I’ve dumped. The clinical trials. The meticulous alcohol scrubbing, chlorohexidine wipes, sanitizer, sterile gloves, and painfully dry hands from washing so much because I’m determined I won’t be the reason a child gets a blood stream infection.

I could tell you about the nasogastric tubes I’ve inserted and watched be thrown up, the sadness of listening to a 16 year old, eager to experience life and her teen years, tell her dad how sad she is to miss her youth group retreat that weekend.. The worry in a mothers voice when she asks, “will my child’s hair or eyelashes ever grow back?”

I could tell you about the telephone calls to the doctor at 3am when something didn’t seem right, the fear I felt when my 3 year old patient had a brain bleed, the days when I didn’t eat until 10 hours into my shift because I was worried about my sick patient. The times we’ve called Rapid Response team.

I could tell you about the tears left on my shoulder as I held the mother of a patient who relapsed, and the pain in her voice as she asked, “Why us?” I could tell you the devastation I felt when another patient’s mother broke down to me for the first time in line at Starbucks because the doctor just told her “there’s nothing more we can do for your son”.

I could tell you how hard it is to have professional boundaries when you feel so close and invested in your patient’s lives, how the world seems to stop when a patient’s status changes to DNR… and the times I’ve had to step into the break room to take a few extra minutes to gather myself and breathe.

But,

I could also tell you about the warm hugs, excited greetings, the smiles, the high-fives, the happy transplant posters, the hand drawn pictures, the belly laughter, how special I felt when a patient referred to me as her “favorite” nurse, the friendship I built with the mother of a 9 month old who I cared for most of his short life, the talks about faith I’ve shared with other Christian families, and the way my heart leaps with joy when my patient finds out they are in remission after the battle of their life.

I could tell you about the small fingers that instinctively curl around mine at 4am when I’m feeling for pulses or checking capillary refill, the time a patient kissed my gloved hand as I de-accessed her port, the adorably small babies I’ve held, fed, burped and loved during the first few months of their life. The way I become a Ninja in the dark as I tiptoe around a room….bending my body in strange ways to prevent breaking sterile field or wake up a wiggly baby as I draw blood from their central line.

I could tell you about the five year old who prances around the unit grinning cheek to cheek with her IV pole in hand, the one who calls me “that lipstick nurse”, the little boy who always offers to share his trains or cars, the treats given from families, the thoughtful notes, the privilege of being a “requested” nurse on a primary team.

I could tell you about the pride I feel working for a hospital leading in research and therapies, the happiness that comes with witnessing successful treatments, the number of times a stranger has thanked me and told a story of how pediatric cancer affected their life after seeing my badge.

I could tell you all of these things, but even if I did… it wouldn’t be enough. An entire description will never suffice. Nothing can prepare you for the emotional investment in this career.
And that, my friend, is the pain and beauty of being a pediatric oncology nurse.

 

** ALL PHOTOS, VIDEOS, AND ETC. ARE PROPERTY OF NATHAN’S STORY INC. MAY NOT BE DUPLICATED OR USED WITHOUT PERMISSION OF NATHAN’S STORY INC. PERMISSION WITH THE EXCEPTION OF SHARING THE STORY AS WHOLE  AS SHARED ABOVE …IN DOING SO CAN BRING LEGAL ACTION

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A Piece of Home 2015

As many of you can only imagine being in the hospital over the holidays is no fun…now imagine yourself as a child fighting cancer, a new way of life for you and your family that you have just embarked on in the last month. Nathan started his chemo treatments on Thanksgiving day of 2010, what better day we thought to be thankful for a “beginning to and end”. The chemo treatments were three weeks out of four in the hospital as inpatient, he was pulled out of school and taught by the teacher in the hospital and a home teacher the schools sent to our home, when he was there. Nathan and our family spent every holiday in the hospital as in patient either for chemo treatments or fevers/isolation with the exception of Halloween. The staff did everything they could to help make this as joyful and painless as they could but when it all came down to it we were still in the hospital for the holiday’s, childhood cancer seemed determined to take from us those special moments that we as a family cherish.

We at Nathan’s Story C.C.O. wanted to help make it even more special, beings we could look at it from a different perspective then most since we actually were in the situation. We personally came up with the idea of bringing in “A Piece of Home” for the holidays. Our first year and within months of becoming an official 501(c)(3) we raised funds to get the children that would be in the hospital for the holidays their own holiday tree. The trees we chose were specifically chosen with the children in mind and with the help of Nathan himself. The trees are no more then 32-36″ with fiber optic lights, lights that change colors automatically and cascade through the room with soft soothing colors to be able to relax and and enjoy. This year would be our second year, and we hoped to make it even more magical then the last…We wanted to provide the children and families not only the trees but a holiday evening, that would include dinner, trees, gifts, crafts, and maybe a few games…an evening that will let them forget where they are and let them feel like they have “A Piece of Home” with them.

We are started a fundraiser to help us do just that, and it soared with the help of our volunteers and friends it was a GREAT success, there was plentiful for everyone. We had so many friends and others whom we did not know jump right in and sponsor a Tree for the children and the volunteers to help us that evening was amazing. A special group called the Island Creek Garden Tractor Pullers got involved with the help of the donation of the toys for the children and their siblings, they took up donations and we met one evening and went shopping, we had children from ages 2wks to 18yrs of age.

We’d like to thank everyone who became part of such a wonderful moment for the children and families over the holiday season, you all truly are a blessing.

Thank you!!!

Nathan’s Story Childhood Cancer Organization

 

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** ALL PHOTOS, VIDEOS, AND ETC. ARE PROPERTY OF NATHAN’S STORY INC. MAY NOT BE DUPLICATED OR USED WITHOUT PERMISSION OF NATHAN’S STORY INC. PERMISSION WITH THE EXCEPTION OF SHARING THE STORY AS WHOLE  AS SHARED ABOVE …IN DOING SO CAN BRING LEGAL ACTION

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