FAMILY FUN DAY #forthewarriors

Come on out and have some fun with us at the Main Event near Christiana Mall in Newark, DE. You’ll enjoy some “FAMILY FUN” bowling, billiards, laser tag and gravity ropes and much more…

The evening offers many different opportunities to enjoy a few hours with your kids and/or your family all while making a difference for children fighting cancer. Each ticket costs $30 (plus processing fee) and can be purchased right here on the Eventbrite site. Tickets will be available at the door for $40.

Each ticket purchase will include unlimited bowling & shoe rental, billiards, shuffleboard, laser tag, and gravity ropes; 2 hours of unlimited arcade play and 2 slices of pizza with fountain drink.

Since the following day is President’s Day and a holiday for some kids and parents, why not come out and play hard and sleep in on Monday !

If you’re interested in coming out to support a worthy cause but don’t want to join the activities, a simple purchase of food and/or soft drinks will still ‘make a difference’. Nathan’s Story will get 20% of all proceeds from these purchases….just be sure to give us your receipt at the door and they’ll transfer into funds for the children.

If you feel lucky, you might just want to purchase some 50/50’s at a chance for some really great prizes…..

Thank you in advance for everyone who participates in this family event to raise awareness and funding for those children who need it most and we look forwarding to see you there 😊

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“FOR THE WARRIORS” Slow Pitch Softball Tournament… October 13, 2019

Join the tournament competitive or non-competitive teams and support our children fighting childhood cancer..

COST: $200.00 per team 

COMPETITIVE DIVISION DETAILS:
– 3 game guarantee
– Hit your own ASA approved balls
– 2 home run limit, $10 buy back
– 1st place trophy
– Umpire fees included
NCC Co-ed division rules apply (must be 18 or older)  
– Designated Home Run Hitter – $20 Per                                                                                                                  Game(1 Person)

FUN (NON-COMPETITIVE) DIVISION DETAILS:
– All are welcome!!!!!!
– Wooden bats and balls will be provided
– 3 Game Minimum
– 2 Round Robin + Single-Game Elimination Tournament
– 3 Girl Minimum Per Team
– Designated pitcher (non-fielder) will be provided for both teams
– 10th player can play anywhere on the field
– No walks – 2 pitch maximum

For more information please contact: Amanda at…  alane031690@gmail.com

** Please see below for payment options, to reserve your teams spot, at least half of the fee must be paid on or before September 30, balance would be due Oct. 12 (day before tournament) or day of on Oct. 13


PAYMENT OPTIONS:



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4th Annual STRIKING OUT CHILDHOOD CANCER FUNDRAISER… November 23, 2019

 

 

This is a GREAT FAMILY event, come on out and have some fun while helping to make a difference for kids fighting cancer. 

We are looking for auction/tricky tray items for event;  please if you have or know of someone contact us so we can make arrangements for pick up

Contact us at nathansstory@yahoo.com   

 THANK YOU! “STRIKING OUT CHILDHOOD CANCER”  

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Another date… Happy RE-Birthday Nathan…

Dates like these are and will be embedded in our minds forever, they never leave they 20170406_212513just hang around; mind you some of these dates are ones to be celebrated then others are far from that. This date in particular was a bittersweet date for us, Nathan didn’t have a full match donor and as a last resort Dad had to step in as a partial match, a HAPLO transplant they call it, a risky transplant with a 50/50 chance; we knew that but options were not there for our son, this was ultimately his best chance for survival and beating this 2nd cancer. Nathan did great with the transplant and it was a huge success with 100% donor engraftment and although we knew it would be a long road I can honestly tell you no one expected to be facing this day without our amazing, beautiful, and brave son.

Sadly the cancer was too aggressive and came back DSC_0061with a vengeance, this mind you after the Dr.s set off “a nuclear bomb” inside our son. When your fighting a beast like this you give it everything you possibly can and push forward fighting everyday, hour, minute, and second; and that what each and every one of us did including his treating Drs.

Today I set aside time to be very thankful we had the opportunity we had to20170227_141421 give this possibility to Nathan, a second chance at life or maybe a 3rd, or 4th; honestly he’d been through so much but something Nathan did through it all that we fall back on all the time is and this with knowing he was fighting for his life, to survive time and time again over and over was he lived. Nathan took every opportunity to “LIVE” to succeed, learn, and move forward from helping others to doing things Nathan wanted to do, hiking, sports, laughing, pranking, and learning; he loved to learn. So this day I will look back with excitement, that we had the opportunity but also sorrow because he’s not here to celebrate his day, his 2nd birthday’s anniversary… I always wanted an April baby and I got one even if it was for a short time… I got one <3 YOU!!!  #forever16 #foreverwithus

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Taking “AIM” on Childhood Cancer 4th Annual 3D Archery Tournament

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This gallery contains 116 photos.

Thank you to all who made this possible with phenomenal sponsors and with a record turnout, it was most definitely a bittersweet day for many. The weather although a tad chilly was great, everyone had a good time, shot good … Continue reading

Happy Birthday Nathan: Forever 16

It’s not fair to you or any other child and family having to go through this, childhood cancer is a relentless disease and what it steals form the child is something that can never be regained back, and what childhood cancer stole from your friends and us, your family; your parents and your older brother is absolutely devastating and cruel. You left us for a better place, to gain a new body and become whole again. I do not con20170227_141421sider this loosing to cancer I consider this as you winning eternal freedom and glory; although we suffer and hurt deeply from your loss, I find a piece of comfort knowing that your not suffering and that you didn’t. What you didn’t have a chance to learn as didn’t many others either is, Thursday night Jan. 4th I spoke with your Dr. and learned from your BMB that you had been diagnosed with full t-AML, a third cancer that again had no treatment for you but plan C and that was to only calm it from exploding throughout your body to help ease things, but t-AML after going through osteosarcoma 2x and t-MDS 2x with a BMT would have been unforgiving, and for that I am grateful God spared you from all that but non the less I, WE ALL miss you horribly, every second, minute, and hour of every day.

Today February 27, 2018 I will celebrate your birthday as I know you would want, this is  the day God gave you to me, although for a short time, it was a time of much joy and beautiful memories; a time I’ll/we’ll never forget, a time yet again God answered my prayers, a prayer for another child. I couldn’t have done all this without God by my side and many will wonder how I can feel that way with all you went through and then loosing you, but if many knew the truth that I was to have no more children when I did have you they may understand a bit better what a true miracle you were from the very beginning. I will/am shed many tears and many will flow like the many falls we hiked to, but I know in my heart you are free and in the land of the unimaginable, whole, not sick and complete again; you are alive in my heart and mind and with me in everything I do. I can feel the peace you have at last and all your dreams and desires to make a difference and be there for other children and families, it will all continue to get carried on, you created a legacy Nathan and I promise you, everything you went through and endured will not be in vein; there are many things to be learned from whether it be medically, personally, humanity, and/or just life; many will learn and grow from you as a person, there will forever be “Nathans Story”.

Forever 16, I love you my son… We WILL be together again <3

I will Never Give UP !    #13  #RIPmyultimatewarrior

HAPPY BIRTHDAY

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It Continues On… “ENDLESS”

Novenber 24, 2017

Nathan had some great months in between my last update, he got back on the ice for Sled hockey, Dr pulled his line so he could attend classes with his friends; all was going well, slow but well as it should be for a now 16 year old who has battled cancer for 7 years/3 times and 2 different types of cancers; one would have thought that was the way it should happen, after all that including a Haplo BMT, and a successful one at that with 100% donor(Dad) cells, you’d think whewww it’s over, road to recovery; nice and easy does it and let that kiddo live some life as he should…

Not how it happens in the real world, the world of childhood cancer tends to throw more curve balls then a game of baseball. Nathan’s labs fell pretty suddenly 3 weeks, oppps now 4 weeks ago and naturally everything was going to plan with him and his Haplo, no one expected a relapse; Nathan had all the indicators of no relapse except the labs, he has all donor cells, active GvHD of several forms, and the last BMB there was 0 blasts seen; so as it went Nathan’s labs were not making a come back, so of course a BMB was scheduled and as it would turn out…

Nathan’s t-MDS/Leukemia has made itself known again…

As we looked at our 7 year anniversary in all this, original admission/dx Nov 18, 2010 and Nathan receiving his very first dose chemo on Nov 25, 2010 (was Thanksgiving Day then) we were hearing those words again. words no one, not anyone should have to hear one time let alone now for the 4th “YOUR SON HAS CANCER”  heartbroken, devastated, and NUMB is just a few feelings you have when you hear those words, some get angry, I honestly just don’t have the energy right now for anger nor much else for that matter right now.

Nathan’s situation is rare and unique, of course it couldn’t just be a easy fix, it’s very complicated, we are waiting for test result that are still out on the marrow right now with hopes that he don’t have all the markers he had prior to complicate things even more, there’s not really a treatment out there for Nathan, the transplant was his chance for a cure, but unfortunately the chemo in the process didn’t work well enough and sleeper cells were able to hide away. Nathan is not fully recovered from the transplant yet so his marrow is still in a weak state, which may cause some difficulties. We don’t have a plan of action yet as said above we need to get all the results back from his biopsies first…

I’ve written this post and posted/removed it many times in these past few days, but it’s just not changing the fact that Nathan, more then any other time is truly in the fight for his life. I’m asking you to please keep Nathan in prayers, he needs a miracle and I have to say I do believe in Miracles…

Thank you so much and God Bless!!!!

Nathan’s Mom, Dad and Brother

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Tough Roads (Osteo x2 and t-MDS/Leukemia)

nathanIt’s been some time since an update and I truly apologize to all but it has been pretty rough this last month for Nathan and my time has been few and far between being able to update. So many think because Nathan has had his transplant and is home that all is said and done and everything is fine…it’s not fine; not for Nathan nor anyone else going through anything like this; the days are trying and can be extremely difficult, the side effects, the problems, complications and so on can be trying and relentless, not just for my son but for anyone then add the fact that even know he’s home he’s on isolation; that means the only way he can see anyone inside or out is with a mask, imagine wearing a mask to walk out your front door to say hello to someone and no one really being able to come to visit you…life alone and stuck in time it seems.

Nathan, about a month ago developed a rash on his body and it was a very itchy rash, I know immediately what it was and was not happy at ll to see it with the exception of knowing to see a minor bit of this could be a good thing for Nathan as far as beating this  t-MDS, leukemia; the rash was/is GvHD, Graft vs. host Disease, it’s a rejection rash, something Nathan was at high risk of because of the Haplo transplant and not having the match he truly needed for transplant. Drs prescribed steroid creams along with topical ointments but it just got worse and kept spreading so they had to start Nathan on prednisone to try and get it under control, low dose at first but eventually had to increase it, we started to see it taking effect finally and the GvHD seemed to be responding to this treatment. All’s great right? nope, because what the steroids do for transplant patients can be horrible, I’m not talking the hunger, moods, swelling; I’m talking how they break your system down even more and leave you at the mercy of viral infections and anything else lurking around the the system that wants to come out and rake havoc on you/Nathan…AND that’s exactly what happened; of course!

Nathan began having pain when he would use the bathroom, naturally one would think a UTI, but no it’s not that simple in this world. When your a child you get viruses like all kids do and many you never know you have because at some point every child don’t feel well and then they do and you just don’t know why, well many of those viruses stay in your system like a tag for the body to remember it was there, and it works kinda like an immunity to that virus s you don’t get it again; when your a transplant patient they give you meds to suppress your immune system as to help prevent rejection, those meds are immunosuppressants, hence the reason you need to be on isolation and away from specific things, germs, viruses, molds , and etc. So lets add steroids to that mix, what do steroids do? lower your immune system as well and adds the risks of getting sick and that’s exactly how it went too. When Nathan was younger as many children do he had a virus, that virus along with many tagged in his system so the Drs at least knew it was there to watch for it, anyways the prednisone opened the door for them to come through and one did just that; it’s called the BK poloyoma virus, normally under normal circumstances this would show up and one just doesn’t feel well for a day or two and done, in Nathan’s world it comes back in a different way, it comes back as BKV and usually tags along with it of course HC (Hemorrhagic Cystitis). This is extremely painful and very uncomfortable to endure for anyone let alone a child, a child that’s already been trough hell and back. There is no treatment for this, but to treat the symptoms and ride the course it takes you which is endless days and nights of non stop pain ( won’t go into details, please tap the link and read about it). Want to see a very strong person who has endured so much and done it with amazing attitude and endurance break down and be at the end of their rope?! experience someone going through this, pain meds truly don’t touch this; it’s something you have to just endure; it makes me angry, sad, and every emotion you can imagine runs through you watching your child endure so much and you cannot help them, the fear of him starting to bleed out uncontrollably is real and completely sucks. Nathan can’t have most meds that others can have for pain so that don’t help his situation he can only use certain ones and then the side effects of those on top of whats already a true living hell for anyone especially a kid..I can honestly say his world just suck right now and I’m helpless to it in being able to help him.

Nothing will start getting better until we can get rid of the steroids treating his rejection issue, and that needed to be under control first, and that seems to be where we are at this point, very carefully taking away the prednisone so the body can try to fight the BKV w/HC…this has been the last month for Nathan a living hell, one more thing to endure to survive childhood cancer, it’s been 6 1/2 years of fighting, enduring, and accepting what life keeps dishing out to him; that’s almost half his life now and in the mix of all this he’s working endlessly trying to complete his 10th grade work so he can move onto 11th grade where he absolutely deserves to be…

HATS OFF TO THIS KIDDO… HE JUST KEEPS PUSHING FORWARD REGARDLESS 18618129_10209522195711790_1499877916_o (1)WHAT LIFE KEEPS DISHING OUT TO HIM

Thank you to ALL who continue to keep Nathan in thoughts and prayers…

#myultimatewarriorx3 #kickincancer #cantkeephimdown #nathansstory

 

** ALL PHOTOS, VIDEOS, AND ETC. ARE PROPERTY OF NATHAN’S STORY INC. MAY NOT BE DUPLICATED OR USED WITHOUT PERMISSION OF NATHAN’S STORY INC. PERMISSION WITH THE EXCEPTION OF SHARING THE STORY AS WHOLE  AS SHARED ABOVE …IN DOING SO CAN BRING LEGAL ACTION

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