Pre – Transplant: t-MDS (AML/Leukemia)

Nathan admitted into the hospital directly after surgery for his central lines on Wednesday, there were some complications feeding his lines in, Dr. tried the left side first, where his original lines were placed in 2010, and had no success so moving onto the right side with some complication’s along the way as well, he was able to feed the lines in successfully. Nathan had mild muscle discomfort but with the help of heat packs and a small amount of meds he has almost completely bounced back. Thursday Nathan received his first round of chemo of Bulsaulfan, to begin the bone marrow transplant process, they call these the “minus“ days, leading up to “the” day. Nathan’s received this chemo (Bulsaulfan), every 6hrs, round the clock; he would have it brought in hooked up and it would run for 2hrs, every day for 4 days. During this time he did well, he maintained himself with minimal side effect, nausea and mild fatigue. His central line dressing though is creating havoc as it did before and with this time Nathan’s system being pushed to a greater extreme this is a problem as he needs a sealed and protected site where his central lines exit his chest to prevent infection. His skin has already reacted to the adhesives and it’s creating a contact dermatitis type reaction which we are all being very cautious as as we cannot have it completely breaking down going into transplant on Thursday and the recovery afterwards, so it’s a meeting of the minds to keep it in sync.

Today is day 5 in, (-3) today, Nathan started his second chemo, Cyclophosphamide he will receive this for 2 days at 2hr infusions each along with round the clock medication that called, Mesna; it’s a rescue med to protect his organs from damage due to receiving the Cyclophosphamide chemo. This particular chemo is much stronger and will wipe Nathan out very quickly, and has. It’s been 2 hours since his chemo stopped running and he’s already felt nausea with in ½ hour and much fatigue, he is currently sleeping as I write this.

*Day:  -2

So as life would have it, my update didn’t make it out as planned and we continued into Nathan’s evening with a very sick kiddo into the night and if that wasn’t bad enough for him it triggered a migraine on top of it all, making the vomiting much worse. Today he is feeling much better, thankfully; but again he is hooked up and receiving chemo as I’m re-updating my update.

Nathan is feeling the nervousness of all this especially this second chemo and how he knows it’s going to knock him down and then of course “The transplant” along with the recovery. His spirits are good and he’s determined to kick this, and beat cancers butt and get back to life and everything he loves and enjoys.

Thank you to ALL for so many great words of encouragement and positive thoughts and the many many prayers being said for Nathan and my family… God Bless!

 

Facebooktwittergoogle_plusredditpinterestlinkedinmail

LAP 3 – MDS (premature leukemia)

After a very long month of not feeling well and many concerns with very low blood counts, we sadly share that Nathan has a type of leukemia… MDS is a type of leukemia that is considered immature cells, Nathan’s treatment will basically consist of the same treatment though and he has a much better chance of kicking it’s butt; the treatment plan will consist of very intense chemo administered over days and then into the transplant process. Time is VERY CRUCIAL for Nathan with this, if things take too long, Nathan’s MDS cells can and will turn into full blown AML and that will make a difference in treatment and hardship through the fight. This diagnosis has come from his treatments needed for his osteosarcoma, his chemo’s; that is a risk taken to fight cancer and many other things that involve breaking down the bodies defenses.
We’ve talked to Nathan’s Dr’s and are confident the plan is a good one and gives Nathan a great chance of kicking cancers ass again. The team is close to Nathan already knows a lot about him and that will help him along the way.
Nathan is aware and as of now is handling it pretty well, he is scared, concerned, and very nervous, BUT there is a light at the end of his tunnel still and that hope alone will give him strength. Nathan has been included in all of this and kinda had a feeling it was going in this direction so he sorta expected it when we talked. Nathan has just entered into a new school this year and has truly enjoyed the experience and had made some great friends, he naturally won’t be back the rest of the year but the connection continues and is fantastic for him, as the last 2 battles he’s been through he really has not had “friend” support, so that alone will be a great benefit to him as well.

Nathan has been fighting for just over 6 yrs now between his original diagnosis of osteosarcoma; fighting it twice – to all the surgeries and complications. He’s had tons of chemo, many surgeries, side effects and this just tops it all; his treatment has made him sick: AGAIN. What do you do when your faced with a decision at the time look at the risks in the future or treat and deal with the here and the now…you treat and deal with the here and the now or you have no future to worry about. We and Nathan have no regrets of his treatment options, we are hurt, frustrated, scared and any and all you can imagine and more BUT he’s here, he may be going back into the fight but he’s here to fight and determined to kick butt; AGAIN!!

So many ask what can we do/how can we help…you can help by keeping Nathan and my family in prayers please and you can make a great difference by registering to be a match for marrow donors at:

BE THE MATCH

All it takes is a cheek swab to get in and a little information about yourself.

Please keep Nathan and my family lifted up in prayers…we will conquer but won’t be without a challenge!

Thank you so very much…

God Bless,

Kim

Facebooktwittergoogle_plusredditpinterestlinkedinmail